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FIRST is a vibrant, growing foundation connected to its members and families by the special skin and unique management needs of individuals and families with ichthyosis and related skin types.

Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

FIRST provides information about ichthyosis through our website, via printed publications, our quarterly newsletter, and through our lobbying and advocacy efforts. Our signature event, the National Family Conference, provides attending families an opportunity to forge unforgettable connections with each other and to consult with leading medical experts.

Through its sponsorship of the Ichthyosis Registry, the Tele-Ichthyosis Program, and the Frontiers in Ichthyosis Research Conference, FIRST enables connections among researchers and physicians and provides support for their efforts.

With the assistance of the world-class experts on its Medical & Scientific Advisory Board, FIRST directs and sponsors research in the areas that matter most to our members.

Skin serves a very important function in life – it connects specialized cells and layers of tissue to create an important barrier that protects our bodies.   However, when genetic mutations cause skin to form improperly at birth, the impact on the individual, parents, family and friends can seem overwhelming.   Asking what just happened, wondering what is next, and hoping you are not the only ones are among the early concerns and questions.   Be assured that you are not the only ones.

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