2014 National Family Conference
The FIRST National Family Conference is only a few short weeks away! Check back here for conference updates, including speaker announcements, articles on conference topics, testimonials and more…
June 11, 2014 Stay tuned, even if you can’t attend! #FIRSTNFC
June 5, 2014 Ladies…you won’t want to miss this new breakout session: Do Women with Ichthyosis have Different Concerns than Men? Yes.
April 16, 2014 – How Rude! National Family Conference Tackles Rudeness Head On!
March 15, 2014 – Award-Winning Photographer turned “Diversity” Activist to Keynote Rare Disease Conference in Indiana COLMAR, PA Rick Guidotti to Keynote 2014 National Family Conference in Indianapolis, Indiana, June 20-22, for FIRST, Foundation for Ichthyosis & Related Skin Types, Inc.® Guidotti is an award-winning former fashion photographer turned “diversity” activist, and founder and director of the education and advocacy organization, Positive Exposure. As ichthyosis is a set of rare genetic skin disorders that can often be disfiguring, Guidotti has photographed several members within the ichthyosis community, all in effort to support his message: there is beauty in all of humanity. His photographic exhibition, Positive Exposure; The Spirit of Difference, premiered at the People’s Genome Celebration, June 2001, at the Smithsonian’s National Museum of Natural History in DC and continues to exhibit in galleries, museums, and public arenas internationally.
Jan. 15, 2014 – Read how one member made a connection at a FIRST Family Conference that changed their mind and their life! Conference, Connections & Life Changing Moments