Skip to content

2014 National Family Conference

2014 Conference Logo-WEB

It’s hard to believe, but The FIRST National Family Conference has come to a close. Check back here for post-conference news,  including articles on conference topics, links to interviews, testimonials and more…


July 14, 1014  Conference “Recap” Article – Connecting at the Crossroads and Beyond!

June 11, 2014  Stay tuned, even if you can’t attend! #FIRSTNFC

June 5, 2014  Ladies…you won’t want to miss this new breakout session: Do Women with Ichthyosis have Different Concerns than Men? Yes.

May 20, 2014  Should Grandparents and Extended Familing Attend the Family Conference?

April 28, 2014  Dermatoligist Discusses Integrative Approaches to Skin Care at National Family Conference.

April 16, 2014How Rude!  National Family Conference Tackles Rudeness Head On!

March 15, 2014  – Award-Winning Photographer turned “Diversity” Activist to Keynote Rare Disease Conference in Indiana COLMAR, PA Rick Guidotti to Keynote 2014 National Family Conference in Indianapolis, Indiana, June 20-22, for FIRST, Foundation for Ichthyosis & Related Skin Types, Inc.®  Guidotti is an award-winning former fashion photographer turned “diversity” activist, and founder and director of the education and advocacy organization, Positive Exposure. As ichthyosis is a set of rare genetic skin disorders that can often be disfiguring, Guidotti has photographed several members within the ichthyosis community, all in effort to support his message: there is beauty in all of humanity. His photographic exhibition, Positive Exposure; The Spirit of Difference, premiered at the People’s Genome Celebration, June 2001, at the Smithsonian’s National Museum of Natural History in DC and continues to exhibit in galleries, museums, and public arenas internationally.

Jan. 15, 2014 – Read how one member made a connection at a FIRST Family Conference that changed their mind and their life! Conference, Connections & Life Changing Moments

No comments yet

Leave a Reply

You may use basic HTML in your comments. Your email address will not be published.

Subscribe to this comment feed via RSS